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September 13, 2014 / keeponspinning

It’s not smart to sleep through your medicine time on day 3 post chemo.

It is 152 AM, so officially chemo day 3. Someday i will write and illustrate an amazing blog post about why, exactly, chemo makes you feel bad. But for now, let me share this wisdom with you. When you are on the post chemo day when all your little baby cells all through your body all die at once, releasing their previously protected enzymes and other noxious chemicals, setting off a HUGE cytokine cascade, it is a REALLY bad idea to sleep through the time when you usually take your pain medicine and your anti-throw up medicine and your steroids (for adrenal insufficiency, unrelated to cancer but a major hassle to coordinate with chemo) ,,,, But anyway, when you usually carefully time all your medicines to overlap precisely, and then one evening you sleep right through, several hours past the dexamthasone and the MS Contin and the Zofran and the phenergan and even the fast acting pain meds… on a day when even with the drugs you felt SO BAD that all you could do was whine on the sofa… I can tell you this, that waiting for my medicine to start working was a really, really good way to remind me never, ever to let that happen again.

insurance

Speaking of medicines, have i ever told you how grateful I am to have health insurance??? Look at this one. I have more in the same general ballpark, And that’s not even chemo.

OK, now that all the drugs are working, I am going to try to sleep. That shouldn’t be hard. Except for the HUGE list of thank you notes that has been looking at me all day. Beautiful chemo caps, Masses, meals for our families, Masses, a rosary blessed by a Pope, perfect books and videos, Audibles credits, Masses, and so much help with the children and with driving… Some day. But if you are one of the ever so lovely people who has sent me a card, or taken the time to email me a happy video link or a verse that might uplift me, or carefully wrapped a gift and taken it to the post office and stood in line, hoping that I will unwrap it with as much love and excitement as you put into the parcel on your end… please know that I am ever so grateful.

latest

And speaking of grateful! Amy Boroughs husband Adam is flying to rescue their son.

yul

Amber Gilchrist Anderson has already left to go get her twoboys, and then another friend of mine, you all didn;t fundraise for her, but her baby girl has cancer and so you know how I feel about that, and she is already there with her daughter, getting to hold her in her arms for the first time, hoping to hustle her back to the US at warp speed to avoid an emergency eye removal where she is now… So we’ve just been praying for her (hahaha… just praying :-) That’s funny) So many miracles you all have done, so many miracles. Can’t just be a coincidence that three friends are traveling to the same place on the same weekend, you know? And now, thank you notes still unwritten but medications working, I am going back to sleep….

cate

Tomorrow, photos of MY babies.  And all the news about school.  I totally have to show you George’s communication book from school, if his amazingly gifted teacher keeps it up (she even pastes in photos almost every day) at the end of the year, she will truly have a publishable account of kindergarten inclusion in a Montessori classroom.  I told her the title needs to be “Inclusion Done Right” :-)  Good night, friends, love and hugs and peace to all.

September 10, 2014 / keeponspinning

Chemo in progress as of 10:30 AM ET

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transferred from Facebook a few hours later – Ann O

 

T minus zero. At the infusion center. Number today is 3.5, so better than last weeks 2.9 but still not quite what we’d like…. but good enough to go ahead. So I am wearing my lacy socks from Esther. So here’s how tired this new chemo has made me…. I have not finished one single sock all week. Ugh. OK, here we go, the nurses are coming with my drugs 

September 10, 2014 / keeponspinning

T minus 4 hours (Chemo dose 2)

Five hours have passed since FB posting before the transfer to the blog. So now it’s T minus 4 hours. Emphasis about heart & neuropathy is mine. Ann O

T minus nine hours and 25 minutes until dose number two of my new chemo. Last week my white cell count was borderline (2.9) so there is a chance that if this new drug has dropped it more, they could decide not to do the infusion. That would be bad.

So far the number one side effect has been PROFOUND weakness. and fatigue.

Like “sleep for 12 hours, get up,brush teeth,and then have to take a four hour nap to recover from the extreme exertion of brushing teeth” kind of tired.

And weakness like not being able to pull my shirt off over my head because it’s too heavy kind of weakness.

I now feel like the laziest mama in the entire universe. But so far we are having no cardiac complications or worsening neuropathy. My hair has not yet started to fall out. Nine hours and 21 minutes ….. stress, stress, stress……

September 9, 2014 / keeponspinning

Gratitude!

from Facebook – Ann O

I am so grateful. I have the most generous friends in the whole world. Look at this:

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More from Facebook – Ann O

Amber Gilchrist Anderson

Okay, we still need $345 to be funded for travel! So close!! Our totally, completely fully funded total would be $2845. We owe another $2500 agency fee that they said they would wait on until we returned, but we’d sure love to pay it before we go, just in case they change their mind lol 

September 8, 2014 / keeponspinning

Rescuing Orphans is WAY more fun than chemo

from Facebook – Ann O

Friends – Jaime Vanchura only has a couple of days left for her fundraiser for the Amber Gilchrist Anderson family…. please, please enter… just go like Jaime’s post or share or contribute….. i want this to be my best sock fundraiser ever but the lack of interest is …ummmmm…… underwhelming for sure.

Have you not participated because you think it’s crazy that a family would be adopting two boys without adequate cash in hand to pay those many tens of thousands of dollars in fees and expenses to save their boys’ lives?

 

jaime2

Well, Amber didn’t plan it that way but there were families traveling before them who were truly desperate due to all sorts of disasters, and so Amber shared the funds she’d raised for her boys’ adoption…. and shared and shared and shared. So now she’s about to travel to rescue her sons and needs our help.

They have less than $6000.00 left to go, that’s less than a single dose of some chemotherapies.

Saving boys is way more fun than chemo, for sure. Thanks for listening.

Jaime Vanchura with Elizabeth DeHority and Amber Gilchrist Anderson
Thu · Edited ·
**Free entry just for liking this post**
Well, isn’t this something? Last night I posted that one of our families needed $310 to expedite a power of attorney form their agency overlooked. They travel in just 7 days. Well, you wonderful folks met the need overnight before I could even whip anything up to give away or sell! More folks posted, and it turns out the Anderson family still needs $6500 that Amber said nothing about. Well, I don’t have $6500 today, but I’ve got these socks…
jaime

Ok, Elizabeth DeHority has these socks: beautiful wool, purple with orange and black stripes, knit with 19,200 stitches, every stitch a prayer. They are the perfect companion for quiet morning prayer and sending mamas and daddies to their boys on the other side of the world. While bids on these precious socks often go into the $400-$500 range, this pair could be yours for $5. Make a donation for any amount, and email your receipt to me at biglittledays@gmail.com. $1=an entry. Or, share *or like* this post for a free entry (email me to let me know). We’ll draw a winner the night before the Andersons leave.

Maybe we can send them to Danny and Wayne fully funded. And maybe we’ll just get them a little closer. But I know that more than one family will be blessed by the love of our hands.

Donate to Danny and Wayne’s adoption here: http://reecesrainbow.org/70645/sponsoranderson-2

If you don’t know the story of these socks, you can read about them here: http://www.aholyexperience.com/2014/08/when-life-is-short-the-world-feels-mad/

September 5, 2014 / keeponspinning

Chess camp? YES! (a work in progress)

from Facebook – Ann O
http://www.theknightschool.com/zzspecial.html

You are never going to believe this. In Birmingham, Alabama, there is a chess camp every summer for children with Down Syndrome. Not kidding. Starts at age 5. I am going to start figuring out NOW how George can do this next summer or the summer after. OR, even better, work with these wonderful folks to get them to bring their camp to Charlotte!

 

check

September 4, 2014 / keeponspinning

Prayer Socks + Precious Children

from Facebook – Ann O
I know my list of folks who really, really want a pair of my handmade prayer socks is long, and I am knitting as fast as I can, And ever since my sweet friend Ann Voskamp posted about my socks, people i don’t even know have told me they really need those 19,200 stitches of prayer… (there’s a link to her blog post below) But to tide some lucky winner over until I get further down the list, there is a pair I finished last week up for raffle for an special needs adoption fundraiser for my friend Amber, who is saving two boys from two different provinces of a large Asian country. Her children are medically fragile and need to get to the US for medical treatment as soon as possible. , Here’s a cut and paste from my friend Jaime Vanchura who is doing this fundraiser. You can enter by donating or even by just sharing or posting on your FB page or blog. (of course you can do both ) If you want a neat and tidy post to share, use the one from Jaime’s page linked down below. Thanks so much.

jaime

 

>>>Well, isn’t this something? Last night I posted that one of our families needed $310 to expedite a power of attorney form their agency overlooked. They travel in just 7 days. Well, you wonderful folks met the need overnight before I could even whip anything up to give away or sell! More folks posted, and it turns out the Anderson family still needs $6500 that Amber said nothing about. Well, I don’t have $6500 today, but I’ve got these socks…
Ok, Elizabeth DeHority has these socks: beautiful wool, purple with orange and black stripes, knit with 19,200 stitches, every stitch a prayer. They are the perfect companion for quiet morning prayer and sending mamas and daddies to their boys on the other side of the world. While bids on these precious socks often go into the $400-$500 range, this pair could be yours for $5. Make a donation for any amount, and email your receipt to me at biglittledays@gmail.com. $1=an entry. Or, share *or like* this post for a free entry (email me to let me know). We’ll draw a winner the night before the Andersons leave.

jaime2
Maybe we can send them to Danny and Wayne fully funded. And maybe we’ll just get them a little closer. But I know that more than one family will be blessed by the love of our hands.

Donate to Danny and Wayne’s adoption here: http://reecesrainbow.org/70645/sponsoranderson-2

If you don’t know the story of these socks, you can read about them here: http://www.aholyexperience.com/2014/08/when-life-is-short-the-world-feels-mad/

And the link to my public post is: https://www.facebook.com/photo.php?fbid=10152429164683742&l=9708a8e16f
DANNY and WAYNE for the Anderson family — NM|Reece’s Rainbow Adoption Grant Foundation
Michael & Amber met in a choir class at the University of New Mexico Institute of Religion way back in 1998. They have been married just shy of 14 years. They have three bio children, Seth who is almost 13, Evie who is almost 10, and Gillian who just turned 4. They decided they would have a large fa…
reecesrainbow.org

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